It is well recognised that there is a lack of clinical research in neglected tropical diseases (NTD’s) and this dearth of data limits new advances in disease management and also in the development of new treatments and diagnostic tools. Neglected tropical disease cause devastating disease burden yet the compounding factors of lack funds and limited expertise to conduct high quality research combine detrimentally to impede progress. Therefore an effort is needed that will enable maximum impact with the limited resources available. With this goal in mind it will be important to ensure that study data can be combined and that research effort is coordinated in order to gain the most usable and impactful data. A primary need then is to develop a set of data standards and sharable research tools such as protocols and case record forms.
This new website has been established to draw together the research community and wider stakeholders in a neutral, impartial and open environment. This ‘community of practice’ will be able actively collaborate here within this dedicated space to openly share research tools and protocols, whilst agreeing standards andsharing knowledge. The aim is to facilitate more research in neglected tropical diseases and enable high quality and sharable data by creating shared standards and research tools.
This website is a member area of the Global Health Network which is aiming to accelerate and streamline research through an innovative digital platform facilitating collaboration and resource sharing across global health. An online science park that allows researchers to work together without geographical, institutional or financial barriers achieves this. The result is a productive, interactive environment where research teams accesspeers, generate research documents, acquire technical expertise and develop new protocols in open collaboration to hasten and improve their, and importantly others, research outputs.
The Global Health Network is a thriving system of connected, yet individual, areas that are each led by research groups from all over the world. Each of The Global Health Network’s initiatives focuses on a specific therapeutic area (such as respiratory disease, maternal health or oncology), type of research (for example, diagnostics or microbiology), or are cross-cutting research support communities (such as clinical trials or bioethics).
Global NTD Research is new member area on The Global Health Network that is dedicated to research on Neglected Tropical Diseases. In addition to the conditions listed by WHO the aim to remain as open as possible towards other tropical diseases outside HIV/AIDS, Tuberculosis and Malaria.
The aim is straightforward. To provide an online facility where those who conduct research in neglected tropical diseases, those who are interested in doing so, as well as all the stakeholders, can work together to develop protocols, discuss outcome measures, share challenges, solutions, tools andknowledge. There will also be resources, guidance documents, e-learning courses and webinars, all specialised for NTDs. In addition the NTD research community will also be able to access all the wider tools and resources on The GlobalHealth Network. The content and activities on this space will evolve and be led by needs and reciprocal contributions the community of practice that will be created.
This free, open and widely collaborative initiative has been set up by WHO-TDR with the intention of making available to all interested groups the ability to collaborate and knowledge share within a highly sophisticated digital space.
Please come and have a look and above all else get involved! Please get in touch by clicking on this link.
This website is dedicated to research on Neglected Tropical Diseases. In addition to the conditions listed below, we would like to remain as open as possible towards other tropical diseases other than HIV/AIDS, Tuberculosis and Malaria.
There are different interpretations as to what the term 'Neglected Tropical Diseases' includes. Most prominently, the WHO, the CDC and the Carter Center have published lists that include the following conditions:
Buruli Ulcer (Mycobacterium ulcerans infection)
Dracunculiasis (Guinea-worm Disease)
Human African trypanosomiasis (Sleeping Sickness)
Leprosy (Hansen's disease)
Onchocerciasis (River Blindness)
Soil transmitted helminthiases (STH) (Ascaris, hookworm, and whipworm)
Yaws (Endemic treponematoses)
Other 'neglected' conditions: